Circulation Journal
Online ISSN : 1347-4820
Print ISSN : 1346-9843
ISSN-L : 1346-9843
Pediatric Cardiology and Adult Congenital Heart Disease
Preferences Regarding Transfer of Patients With Congenital Heart Disease Who Attend Children’s Hospital
Ryota OchiaiHitoshi KatoYasushi MisakiMasahide KanekoYukitaka IkedaKoichiro NiwaIsao Shiraishi
Author information
JOURNALS FREE ACCESS FULL-TEXT HTML

2019 Volume 83 Issue 4 Pages 824-830

Details
Abstract

Background: The aim of this study was to determine preferences regarding transfer of patients with congenital heart disease (CHD) attending a children’s hospital in Japan and related factors.

Methods and Results: We conducted a self-administered questionnaire survey with CHD patients >15 years of age treated at the pediatric cardiology outpatient clinic of a children’s hospital. Logistic regression analysis was used to identify factors related to patient preferences regarding the transfer. One hundred and eleven of the 122 patients given a questionnaire provided valid responses (valid response rate, 91.0%). Sixty-six subjects (64.9%) reported “not being told anything specific” by their physicians about the transfer from the children’s hospital, and 72 (59.5%) stated that they “wished to continue attending the children’s hospital”. Visiting outpatient clinic with parents (OR, 11.00; 95% CI: 2.01–60.97), having low uncertainty about continuing to attend the children’s hospital (OR, 0.95; 95% CI: 0.92–0.98), and having high uncertainty about leaving the current physician (OR, 1.04; 95% CI: 1.01–1.07) were significantly related to the patient’s wish to continue to attend the children’s hospital.

Conclusions: There is a need to improve patient education regarding the opportunities for transfer, and to develop a systematic transition program for children’s hospitals and aligned specialized adult CHD centers.

Information related to the author
© 2019 THE JAPANESE CIRCULATION SOCIETY
Previous article Next article
feedback
Top