Unified Management of Hematopoietic Cell Transplantation Registry and Registry Study

Abstract

The Japan Society for Hematopoietic Cell Transplantation (JSHCT), the Japanese Society of Pediatric Hematology and Oncology (JSPHO), the Japan Marrow Donor Program (JMDP), and the Japanese Cord Blood Bank Network (JCBBN) have collected transplant outcome information for more than two decades. Separated databases are now a centralized database program called TRUMP. The current database has more than 65,000 transplant cases registered. JSHCT Working Groups are actively performing registry studies, whose outcomes affect future patients and transplant procedures. Quality of data as well as quality of statistical analyses is an essential factor when performing registry studies.