Development of the activity scale for patients with hemophilia

Abstract

For the purpose of developing a new scale of activities of daily living (ADL) among the patients with hemophilia, an anonymous survey was conducted. Main items investigated were subjects' biographical data, ADL and Health related Quality of Life (HRQOL). The difficulty degree of 21 items of ADL was investigated. HRQOL was measured by using SF-36. Valid responses were 259 (37.5%), average age was 40.9 years old. For the purpose of developing a new scale of ADL, 12 items were pick out of 21 items and a ranking analysis was performed by using principal component analysis. 12 items of ADL were squatting and up and down stairs, climbing a steep, standing up by the floors, sitting down on the floors, cutting toe nails, removing buttons, walking without any supports, washing one's face on the both hands, washing oneself, sitting down on the chairs, removing one's socks. According to the result of principal component analysis, 1st and 2nd component were extracted. The 1st. component was interpreted as ability for ADL. It was able to be said so because the ratio for all axial variance was 49.0%, and ADL of the subjects could almost be interpreted on the 1st. component. A total score of this scale was found ranging from 0 to 100 points. ADL of subjects were scored using this scale. There were significant association between HRQOL / bleeding frequency / severity and this scale. By using this scale, it is possible to mark for the difficulty degree of ADL.