The Japanese Journal of Rehabilitation Medicine
Online ISSN : 1880-778X
Print ISSN : 0034-351X
Preliminary Results of Providing Information to Stroke Family Carers
How their Psychological Distress may Change during the First 3 Months Following Stroke
Yuriko WATANABEShiho ARAKIMasaki KURIHARA
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Volume 40 (2003) Issue 12 Pages 848-857

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Abstract

Purpose: To assess the effects of an information kit on stress, anxiety and depression in stroke patients' families in subacute stages of stroke. Methods: Patients admitted to a hospital with acute stroke were eligible for the study. If patients met inclusion criteria, patients and their families were approached and assessed. The information kit was either handed to the families or sent by post. Patient's functional outcome was measured using the Functional Independence Measure. The modified Caregiver Strain Index, the Hospital Anxiety and Depression Scale, and the Short Form 36 (SF-36) were included in the families' questionnaire. All assessments were performed at 2 weeks, 1 month and 3 months after stroke except SF-36 (1 month and 3 months only). Results: 14 stroke patients and their family carers, with the mean ages of 63.4 and 58.8 years respectively, were followed up. On initial assessment, families expressed mild stress, and were at risk of anxiety and depression. Even though patients showed significant functional improvement, the levels of family stress, anxiety and depression increased over time. With regard to health related quality of life, families reported lower SF-36 in comparison to the national normative data at 1 month follow up, and the scores did not change at 3 months. Conclusion: While this study sample was too small to make firm conclusions, the information kit did not affect family stress, anxiety and depression. Further investigation is required to enable rehabilitation specialists to provide more appropriate information targeted to individuals.

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