Objective:IThe purpose of this study is to clarify what kind of nursing care the nurses who visit homes of infants suffering from severe motor and intellectual disabilities practice during the first year when they start living at home.
Methods:I chose qualitative descriptive research design, and to collect data I conducted fieldwork centering on participant observations when nurses visited an infant at home as well as interviews with the nurses. The study participants were four nurses and four families.
Results:It was found that the nurses’ efforts changed as follows(The double quotation marks indicate themes):Their support began with “getting to know the characteristics of the child and the nursing care needed,” which was followed by interaction with the parents by “assisting them as they went through the trial-and-error process” and “taking the lead at the right time as was needed,” gradually shifting to “playing a role as an instrument to be utilized by the family.”
Conclusion:The results of this study suggest that the nurses’ care contributed to the growth and development of the child at their own pace as well as the parents’ mental and physical wellbeing. The practices included identifying latent needs constituted with non-verbal needs such as the child’s intention and potential for growth and development. The nurses’ method, that deliberately makes no attempt to instruct the parents, helped them gain confidence about child rearing and provided stability to the family’s entire life leading to a life of their own.
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