Journal of Japanese Society of Genetic Nursing
Online ISSN : 2436-9098
Print ISSN : 1881-3267
ISSN-L : 1881-3267
Volume 1, Issue 1
Displaying 1-4 of 4 articles from this issue
  • Hidechika Iino, Masato Tsukahara, Kyoko Murakami, Kumiko Tsujino
    2003Volume 1Issue 1 Pages 2-9
    Published: March 31, 2003
    Released on J-STAGE: June 26, 2024
    JOURNAL FREE ACCESS

      The parents who have children with congenital malformations have some complicated psychosocial issues. The purpose of this study was to determine what their anxieties were and the number of advisers that they consult.

      A questionnaire was used to perform this study after consent was obtained. The sample consisted of 40 parents with returned completed surveys, providing a total response rate of 100%. About 80% (n=31) of the respondents indicated that they have some anxieties related to their children. Their anxieties include a) their children's life in the future (50%), and b) the physical and developmental problems of their children (17%). Three parents (7.5%) didn't have any adviser and public facilities such as public health center to consult. The total number of advisors for father and mother was 34 (mean; 1.7 per person) and 56 (mean; 2.8 per person), respectively.

      This study suggested that it is important for pediatric nurses to assess the number of adviser and public facilities that patients who have children with congenital malformations can consult.

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  • Shiho Hiratsuka
    2003Volume 1Issue 1 Pages 10-18
    Published: March 31, 2003
    Released on J-STAGE: June 26, 2024
    JOURNAL FREE ACCESS

      Two judicial precedents, raised in the United States pertaining to the warning duty of the physicians of those known to be at risk of genetic disorders, were presented and studied.

      The Supreme Court of Florida held that: (1) if, as alleged, physicians had duty to warn of genetically transferable nature of condition, duty ran to patient's children despite lack of privity, and (2) such duty would be discharged by warning patient, and it would not be necessary for physicians to warn children.

      On the other hand, Superior Court of New Jersey held that: (1) physician has duty to warn those known to be at risk of avoidable harm genetically transmissible conditions, and (2) physician's duty extends to members of immediate family of patient who may be adversely affected by breach of duty.

      Considering the particularity with which a genetic code involves, the range and limitation of warning duty of a physician toward persons with the risk of genetic disorders is to be clarified, in light of the problems detailed below, form a legal standpoint as well as an occupationally ethical standpoint.

    1. Should a physician's warning duty include informing others known to be at a risk?

    2. Should a physician be allowed to breach the confidentiality between himself and his patient, regarding the patient's condition, in the case where the physician seeks to warn those known to be genetically at a risk?

    3. Due to the nature of the confidential information exchanged between the patient and his physician, is it necessary for a physician to obtain consent directly from his patient when he wants to warn others known to be at risk? Or is it the patient's duty to do the warning?

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