In 2012, Japan's Child Welfare Law and the Law for Comprehensive Support for Persons with Disabilities were revised. After a system transition to accommodate people with profound intellectual and multiple disabilities (PIMD), the Law for Supporting Children with Medical Care was enacted in 2021. However, support for people with PIMD who require medical care and those over 18 years of age is still far from sufficient. Advances in medical care have led to an increase in the number of people with PIMD who require medical care and an increase in the life expectancy of people with PIMD. The burden of care and nurturing parents have to bear from their child's birth requires a “shift to social support,” “support for aging caregivers,” and “support after the death of a parent.” In this paper, we once again outline the people with PIMD and the system. We also attempt to look at the issue of support, including the transition period from “child” to “adult” based on the general situation in Japan, as well as future prospects for support for the coexistence of adult people with PIMD in the community.

　　The purpose of this study was to examine the thought and action processes of parents regarding the employment of their children with higher brain dysfunctions with early onset of the injuries, to promote their participation in society after graduation. Methods: Semi-structured interviews were conducted with 10 parents of children with higher brain dysfunctions who were employed after graduating from schools. The results were analyzed in accordance with the Modified Grounded Theory Approach, and the resulting charts and storylines were created. Four categories, two subcategories, and 20 concepts were obtained as “the process of parents' thoughts and actions in searching for a place to live for a person with higher brain dysfunction who was injured in childhood”. Parents seemed to begin the “search for a place to stay” with “endless anxiety about the reality and future of their children,” But “a sense of dissatisfaction with the absence of support and information” seemed to “determination and action to protect their children,” which would lead to “enforced idealization of what their children should be like before the injury.” This process of parental thought and actions indicates the need for adequate support for parents and the development of support systems.