Intractable & Rare Diseases Research
Online ISSN : 2186-361X
Print ISSN : 2186-3644
ISSN-L : 2186-3644
Letter
DEBRA International: International cooperation to improve healthcare access for patients with epidermolysis bullosa
John Dart
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JOURNAL FREE ACCESS

2012 Volume 1 Issue 3 Pages 138

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Abstract

Epidermolysis bullosa (EB) is a group of genetic conditions causing blistering to the skin and body linings which vary in the extent of symptoms but are always painful and disabling and often life threatening. In its most severe form it is fatal in infancy. Currently there is no cure or effective treatment but good management greatly improves quality of life and current research offers good prospects for therapy development. ...

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© 2012 International Research and Cooperation Association for Bio & Socio-Sciences Advancement
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