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Intractable & Rare Diseases Research
Vol. 6 (2017) No. 2 p. 148-149




China has the world's largest population of people with rare diseases. However, defining rare diseases remains a challenge in China. Over the past few decades, several definitions have been proposed but they have yet to be agreed to by all stakeholders. To overcome this impasse, a list of several rare diseases has recently been created. This rare disease list might be used in place of a prevalence-based definition, especially in healthcare policy-making.

Copyright © 2017 International Research and Cooperation Association for Bio & Socio-Sciences Advancement

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