Perplexities Facing Nurses Working with Families of Patients with a Malignant Brain Tumor: From Announcing the Diagnosis to Initial Treatment

Abstract

Objective: To clarify the perplexities faced by nurses supporting families of patients with a malignant brain tumor, from the diagnosis announcement to the initial treatment.

Method: Semi-structured interviews were conducted with 10 nurses experienced in dealing with families of patients with brain cancer, from the diagnosis announcement to the initial treatment. The collected data were analyzed using the modified grounded theory approach.

Result: The subjects were [frightened at seeing patients and their families in shock] at the diagnosis. Through the diagnosis, announcement and treatment selection, although they told themselves that only the patients and families can make the best decision and respected inconsistent decisions, they [could not function as a nurse and felt distressed]. They felt increased anxiety regarding personality changes in patients and impatience due to the perception gap about the situation between themselves and the families, and wanted to support close family relationships, feeling [anxiety about the loss faced by the families]. They decided to [act as a bridge between and work with] doctors, patients, and families to the last moment.

Discussion: While working, nurses accepted the emotions of patients and families and respected families as they were. Education for nurses to recognize and give a positive meaning to their perplexities will improve the nursing quality.

Conclusion: The perplexities facing nurses working with families of patients with a brain cancer help them become ready to support the lives of patients and families after the initial treatment.