Japanese Journal of Research in Family Nursing
Online ISSN : 2758-8424
Print ISSN : 1341-8351
Relationships Weaved Through the Experiences of Mothers with High-Functioning Autism Spectrum Disorder (ASD) and Their Children Being “Raised by Parents” and “Raising Children”
Mari KatoAkiko Kadoma
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2025 Volume 30 Pages 1-17

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Abstract

The study aimed to explore the experiences of mothers with high-functioning autism spectrum disorder (ASD) and their children in terms of being “raised by parents” and “raising children,”while also examining the ASD-associated characteristics of the mother–child relationships. Semi-structured interviews were conducted with five mothers with ASD and two of their children. We identified the following four key categories related to the experiences of being “raised by parents” and “raising children”: 1) Parents’ attempts to raise them properly, 2) Challenges in relying on parents, 3) Raising their children in their own way, and 4) Similarities between mothers and grandparents. Further, we identified the following five categories related to mothers’ experiences of “weaving relationships” with their children: 1) Mixed feelings toward children’s behavior and indifference, 2) Self-reflection on the impact of personal characteristics on children, 3) Balancing parenting with personal traits and challenges, 4) Equal and peaceful interaction, and 5) Respecting children’s autonomy and supporting their success. The children’s experiences of “weaving relationship” with their mothers were grouped into two categories: mutual support in coping with each other’s challenges and complex emotions toward the mother and surroundings. The relationship between mothers with ASD and their children was ambivalent and complex, characterized by mutual care, support, and self-criticism. To effectively support these relationships, traditional support should be complemented with diverse perspectives and enhanced mutual understanding, involving open dialogues with these mothers and relevant stakeholders.

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© 2025 Japanese Association for Research in Family Nursing
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