Employment support experienced by individuals with early-onset dementia: an ethnographic study of continuous support for employment services – type B

Abstract

Aim: This study aimed to elucidate the employment support experiences of individuals with early-onset dementia (EOD).Methods: Participant observation and interviews were conducted on individuals with EOD receiving continuous support for employment services – type B. Field notes and verbatim interview transcripts were analyzed using the micro-ethnography method. The Ethics Committee of the presenting institution approved the study.Results: The core category identified was "feeling unable to perform anything owing to dementia, replaced by an improved mood when attending the facility."The related categories began with "continuing to do what I can without causing trouble" and progressed to "reaching the facility without getting lost, thanks to the transportation service." Additional experiences included "informing family members and fellow users of my condition," "enjoying support and activities with other users," "engaging in favorite activities that I cannot do alone," and "facing my fears and trying things." Ultimately, these experiences culminated in "attending a safe place," "being trusted and finding meaning through cooking," and "willingly attending the facility despite worsening symptoms."Conclusion: The individual with early-onset dementia attended the facility without hesitation, engaged in meaningful activities, gained an understanding of her surroundings, and collaborated with other users. This experience gave her a sense of security and greater autonomy, expressing her desire to continue attending the facility.