小児特発性血小板減少性紫斑病 (ITP) のQOL調査成績 管理ガイドライン作成に向けて

三間屋 純一; 白幡 聡; 石井 榮一; 今泉 益栄; 太田 茂; 岡 敏明; 梶原 道子; 北澤 淳一; 久保田 優; 高橋 幸博; 瀧 正志; 藤沢 康司; 三浦 琢磨; 小林 尚明; 小林 正夫; 中舘 尚也; 長澤 正之; 堀越 泰雄; 別所 文雄

doi:10.11412/jjph1987.22.385

QOL Survey of Children with Idiopathic Thrombocytopenic Purpura (ITP)

Draft Guidelines for the Management of ITP

Jun-ichi MIMAYA, Akira SHIRAHATA, Eiichi ISHII, Masue IMAIZUMI, Shigeru OHTA, Toshiaki OKA, Michiko KAJIWARA, Junichi KITAZAWA, Masaru KUBOTA, Yukihiro TAKAHASHI, Masashi TAKI, Kohji FUJISAWA, Takuma MIURA, Naoaki KOBAYASHI, Masao KOBAYASHI, Hisaya NAKADATE, Masayuki NAGASAWA, Yasuo HORIKOSHI, Fumio BESSHO

Author information

Jun-ichi MIMAYA
Division of Hematology and Oncology, Shizuoka Children's Hospital
ITP Committee, Japanese Society of Pediatric Hematology
Akira SHIRAHATA
Department of Pediatrics, University of Occupational and Environmental Health
Japanese Study Group on Childhood ITP
Eiichi ISHII
Department of Pediatrics, Ehime University Graduate School of Medicine
ITP Committee, Japanese Society of Pediatric Hematology
Masue IMAIZUMI
Division of Hematology and Oncology, Miyagi Children's Hospital
ITP Committee, Japanese Society of Pediatric Hematology
Shigeru OHTA
Resident Center, Shiga University of Medical Science
ITP Committee, Japanese Society of Pediatric Hematology
Toshiaki OKA
Department of Pediatrics, Sapporo Tokushukai Hospital
ITP Committee, Japanese Society of Pediatric Hematology
Michiko KAJIWARA
Department of Transfusion Service, Faculty of Medicine Hospital, Tokyo Medical and Dental University
ITP Committee, Japanese Society of Pediatric Hematology
Junichi KITAZAWA
Department of Pediatrics, Kuroishi General Hospital
ITP Committee, Japanese Society of Pediatric Hematology
Japanese Study Group on Childhood ITP
Masaru KUBOTA
Faculty of Human Life and Environment, Nara Women's University
ITP Committee, Japanese Society of Pediatric Hematology
Yukihiro TAKAHASHI
Division of Neonatal Intensive Care, FetalMateral Neonatal Medical Center, Nara Medical University Hospital
ITP Committee, Japanese Society of Pediatric Hematology
Japanese Study Group on Childhood ITP
Masashi TAKI
Department of Pediatrics, St. Marianna University School of Medicine Yokohama City Seibu Hospital
ITP Committee, Japanese Society of Pediatric Hematology
Kohji FUJISAWA
Fujisawa Clinic for Children
ITP Committee, Japanese Society of Pediatric Hematology
Japanese Study Group on Childhood ITP
Takuma MIURA
Department of Pediatrics, Endo Ladies Clinic
ITP Committee, Japanese Society of Pediatric Hematology
Naoaki KOBAYASHI
Department of Pediatrics, Kanagawa Prefectural Shiomidai Hospital
Japanese Study Group on Childhood ITP
Masao KOBAYASHI
Department of Pediatrics, Faculty of Medicine, Hiroshima University
Japanese Study Group on Childhood ITP
Hisaya NAKADATE
Department of Pediatrics, School of Medicine, Kitasato University
Japanese Study Group on Childhood ITP
Masayuki NAGASAWA
Department of Pediatrics and Developmental Biology, POST-Graduate School, Tokyo Medical and Dental University
Japanese Study Group on Childhood ITP
Yasuo HORIKOSHI
Division of Hematology and Oncology, Shizuoka Children's Hospital
Japanese Study Group on Childhood ITP
Fumio BESSHO
Department of Pediatrics, Kyorin University School of Medicine
Japanese Study Group on Childhood ITP

Keywords: ITP, QOL, guideline, management

JOURNAL FREE ACCESS

2008 Volume 22 Issue 5-6 Pages 385-390

DOI https://doi.org/10.11412/jjph1987.22.385

Details

Abstract

Criteria for hospitalization and management of daily activities including exercise by children with idio-pathic thrombocytopenic purpura (ITP) differ significantly among institutions and physicians, causing confusion among patients and their families. The ITP Committee of the Japanese Society of Pediatric Hematology recently prepared draft ITP management guidelines on the basis of the results of a quality of life (QOL) survey in ITP children in institutions in which members of the Japan Pediatric ITP Study Group practice. Although the ITP guidelines may not be applicable to all children with ITP, who may differ significantly in age, sex, family environment, healthcare services available in the institutions they visit, and other social factors, we hope the guidelines will provide a rough outline for use by medical instructions to ensure the quality of life of children with ITP.

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