2010 Volume 9 Issue 1 Pages 29-38
The purpose of the present research was to clarify the psychological and social problems in patients with Marfan syndrome ( De Paepe et al. Am J Med Genet 1996；62：417 ). Using the Modified Grounded Theory approach, the interviews of 10 patients with Marfan syndrome ( mean age; 38±5.2 years ) were examined. From the analysis of these interview, it was revealed that the patients were confronted with severe problems consist of 26 concepts. These concepts were organized into ７ categories including their awareness of genetic problems, view of life and death, internal conflict against marriage or maternity, difficulty in economic situation and employment．
That’s where this research was to clarify how living with Marfan syndrome and obtaining nursing for patients with Marfan syndrome．And this research results will go a long way toward to genetics nursing．
