2023 Volume 72 Issue 5 Pages 454-463
The enactment of Act on Anonymized Medical Data That Are Meant to Contribute to Research and Development in the Medical Field (the Next Generation Medical Infrastructure Law) has initiated of operations of the certified anonymized medical data-producing agents. However, the awareness of these agents and the significance and potential benefits of using anonymized medical information remain limited, possibly hindering the utilization of using agents. This study aimed to understand the current awareness pertaining the Act the agents, and to subsequently identify key areas for future awareness campaigns and recommendations for the policy. We conducted the web-based survey targeting potential users, including academic stakeholders and local government. The results revealed that the overall awareness of the Act and the agents was low. To improve awareness and promote the utilization of accredited entities, support for both the users and the agents is imperative.
