Journal of Science and Technology Studies
Online ISSN : 2433-7439
Print ISSN : 1347-5843
Research Note
Entrusted Meaning on Genetic Information
Discourse of People with Genetic Disease
Yuko NIKAIDO
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JOURNAL FREE ACCESS

2019 Volume 17 Pages 118-128

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Abstract

 Research by scientists and medical professionals imparted words such as “numerical abnormality,”“deficient,”“ micro-mutation” to the number and the condition of chromosomes in the cell. And then, these words become apart from biological nomenclature and act as if these are the actual material which causes social differences. That is to say, the body of a person whose genetic substance diagnosed as the cause of disability is considered as if it is a platform to build specific genetic information on expression of value such as ability or appearance. This paper examined with the study of the interview conducted for people with disabilities how people with genetic disease use genetic information from the perspectives of personalization and depersonalization. As a result, it was clear that genetic information personalized to individuals symbolized that it was accompanied by a concept of time, while the genetic information used for depersonalization was not.

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© 2019 Japanese Society for Science and Technology Studies
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