2022 Volume 16 Issue 1 Pages 1_21-1_33
Objective: Inflammatory bowel disease (IBD) is evaluated based on its severity using a disease activity index; however, the existing index has limitations in understanding the patient’s condition to provide nursing help. Therefore, we developed evaluation items of disease activity from the view point of nursing and aimed to examine its content validity.
Methods: We extracted descriptions of disease activity from previous studies and obtained 967 codes. Then, 92 items were created based on the results of NVivo qualitative analysis software, and deductively aggregated to the domain of disease activity as defined by the author. The final items were presented to nurses skilled in IBD nursing, and their opinions were collected in focus group interviews, and the final items were those for which consensus was reached by the IBD nursing expert council.
Results: A total of 85 items were refined: 11 for inflammation, 9 for subjective symptoms, 34 for quality of life, 25 for the treatment, and 6 for IBD recognition. Subsequently, the surface and logical validities of these items could be confirmed.
Conclusions: The content validity of the IBD activity evaluation items captured by nurses was confirmed by FGI for nurses skilled in IBD nursing. The items in this assessment reflect the IBD characteristics, characterized by a discrepancy between findings on examination and symptoms, and their usefulness in clinical practice may help us understand the hidden needs of patients associated with the disease and to provide nursing help based on the goals of IBD treatment and individual patients’ own personal goals.
