Abstract
Background : As the hereditary breast and ovarian cancer (HBOC) syndrome has been approved for medical insurance, treatment for this rare syndrome can now be provided by not only university hospitals but also general hospitals like our institute.
Purpose : We presented our process to decide how to handle genetic information using the electronic medical record system to introduce treatment for the HBOC syndrome to our hospital.
Methods : The introduction process was retrospectively presented.
Results : First, a genetic medical subcommittee in the hospital was established as a subordinate organization of the cancer medical subcommittee. Next, we discussed ways to handle the results of the genetic tests using the electronic medical record system. Finally, it was decided that we would handle them on the electronic medical record system as general medical information, ensuring a continuous attempt to keep genetic information secret at improving the work style of the staff involved. To achieve this, the following three measures were considered: knowledge sharing among the staff members using guidelines for handling genetic information, displaying the login records of the electronic medical record system to prevent the staff from browsing medical record without permission, and disclosing information about the introduction of HBOC medical care.
Discussion : As the provision of treatment for the HBOC syndrome expands, it is important to continuously educate the staff involved in the management of this disease by sharing the latest evidence on it.
