Care transitions for pediatric hemato-oncology survivors: a basic policy in Japan Society of Pediatric Hematology–Oncology

Abstract

Owing to advances in treatment, the prognosis of pediatric hemato-oncologic diseases has improved dramatically. It is estimated that more than 100,000 survivors are reaching adulthood in Japan. On the other hand, several studies have shown that more than half of these patients experience the late effects of original cancer- and treatment-related complications. Currently, there are several hurdles and challenges that survivors with these late effects have to overcome; thus, there is a need to facilitate a smooth transition to adult-oriented healthcare. To date, transition to adult-oriented healthcare of patients with childhood-onset chronic conditions is a significant challenge not only in hemato-oncology but also in other pediatric specializations. In this review, we emphasize the necessity of establishing a transition support program, a government-led support system, and educational tools to ease the transition. For a smooth transition to adult-oriented medicine, survivors are encouraged to be independent and well-educated. We would also like to highlight the importance of mutual dialogue between pediatric hemato-oncologists and adult-oriented healthcare specialists. The Japan Society of Pediatric Hematology-Oncology will provide multidisciplinary support in collaboration with the Adult-based Medical Society and other subcommittees of the Japan Pediatric Society. It will work as an academic society to help survivors and their families continue managing their health without unnecessary worries.