進行がん患者と遺族のがん治療と緩和ケアに対する要望―821名の自由記述からの示唆

古村 和恵; 宮下 光令; 木澤 義之; 川越 正平; 秋月 伸哉; 山岸 暁美; 的場 元弘; 鈴木 聡; 木下 寛也; 白髭 豊; 森田 達也; 江口 研二

doi:10.2512/jspm.6.237

Rapid Communications

Requests for cancer treatment and palliative care: suggestions from 821 advanced cancer patients and bereaved families

Kazue Komura, Mitsunori Miyashita, Yoshiyuki Kizawa, Shohei Kawagoe, Nobuya Akizuki, Akemi Yamagishi, Motohiro Matoba, Satoshi Suzuki, Hiroya Kinoshita, Yutaka Shirahige, Tatsuya Morita, Kenji Eguchi

Author information

Kazue Komura
Department of Clinical Thanatology and Geriatric Behavioral Science, Graduate School of Human Sciences, Osaka University
Mitsunori Miyashita
Palliative Nursing, School of Medicine, Tohoku University
Yoshiyuki Kizawa
Graduate School of Comprehensive Human Science, University of Tsukuba
Shohei Kawagoe
Aozora Clinic
Nobuya Akizuki
Department of Psycho-Oncology, Chiba Cancer Center
Akemi Yamagishi
Department of Adult Nursing/Palliative Care Nursing, School of Health Sciences and Nursing, Graduate School of Medicine, The University of Tokyo
Motohiro Matoba
Department of Palliative Medicine, Palliative Care Team, National Cancer Center Hospital
Satoshi Suzuki
Department of Surgery, Tsuruoka Municipal Shonai Hospital
Hiroya Kinoshita
Department of Palliative Medicine and Psycho-Oncology, National Cancer Center Hospital, East
Yutaka Shirahige
Shirahige Clinic
Tatsuya Morita
Department of Palliative and Supportive Care, Seirei Mikatahara General Hospital
Kenji Eguchi
Department of Internal Medicine and Medical Oncology, Teikyo University School of Medicine

Keywords: palliative care, content analysis, free description

JOURNAL FREE ACCESS

2011 Volume 6 Issue 2 Pages 237-245

DOI https://doi.org/10.2512/jspm.6.237

Details

Abstract

It is important to collect patients' and their families' opinions to provide good palliative care. This study aims to analyze the contents of free description provided by the survey for cancer patients and bereaved families, which was performed before the intervention of The Outreach Palliative Care Trial of Integrated Regional Model (OPTIM) study. Requests for and good points of cancer treatment and palliative care were collected and classified. 1,493 advanced cancer patients and 1,658 bereaved families in four areas received the questionnaire, and 271 patients and 550 families filled in the free description. Cancer patients and bereaved families had demands for improved communication with medical staff, improved quality of pain relief, financial support of treatment, more educational activities on palliative care, and improved cooperation within and outside hospitals. Palliat Care Res 2011; 6(2): 237-245

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