Abstract
In this paper, I examine the process by which the people living with HIV/AIDS (PWHs) got involved in collective activities. In particular, I will focus on hemophiliac PWHs who joined in "case supporting organizations." In Japan, about 1,400 hemophiliacs contracted HIV due to a tainted blood product (chemical poisoning). When they filed suits against the Japanese government and pharmaceutical companies from 1989 to 1996, the stereotypes toward HIV/AIDS were blatantly exaggerated and quite prevalent. How did hemophiliac PWHs get involved in these cases and support organizations? How did they avoid "bashing" and discrimination?
Hemophiliac PWHs behaved like "conscience adherents" without coming out about their HIV infection. They secured their safe participation within such support groups as this enabled them to avoid an environment of seated prejudice. The programs in the support groups sometimes urged the other participants to be aware of PWHs who are invisible in their ordinary life. This awareness makes it more difficult to resolve the problem of elimination/exclusion of PWHs. This trial generates an opportunity of cooperation among people with/without HIV. It can be said that all members are concerned with HIV/AIDS as conscience adherents. Thus, this trial enables hemophiliac PWHs to participate in case support programs and communicate with others, with ease.
This paper asserts that the notion of "conscience adherents" applies not only to pre-infectors but also to PWHs. These findings can contribute to the sociology of social movements and collective action, and also to our understanding of living a life with HIV/AIDS.
