Abstract
In this study, we investigated the health-related quality of life (QOL) in home care patients with intractable neurological diseases (IND) to clarify the factors correlated with the health-related QOL. We administered a questionnaire to 43 study subjects (home care patients with IND and their family members), who consented to study participation. The health-related QOL was evaluated with the MOS 36-Item Short-Form Health Survey (SF-36). Concerning the factors correlated with the health-related QOL, we used the Barthel Index (BI), Frenchay Activities Index (FAI), and Nottingham Adjustment Scale Japanese Version (NAS-J) to assess basic ADL, instrumental ADL, and psychological adjustment, respectively. The SF-36 subscales of physical functioning, role physical, role emotional, and social functioning were positively correlated with both BI and FAI scores, and all of the SF-36 subscales with NAS-J subscale scores. Thus, the health-related QOL of home care patients with IND was correlated not only with basic and instrumental ADL, but also psychological adjustment.
