2021 Volume 53 Issue 1 Pages 10-14
Objective: This study aimed to establish the Japanese version of internationally used Cerebral Palsy Quality of Life Questionnaire for Adolescents (CPQOL-Teen) Self Report Questionnaire to evaluate the subjective QOL of adolescents with cerebral palsy (CP) in Japan and to examine its clinical utility. Methods: We translated CPQOL-Teen Self Report Questionnaire into Japanese with the permission of the original authors, and applied it to 57 adolescents with CP and 58 typically developed adolescents (TD). Results: The Japanese version of CPQOL-Teen Self Report Questionnaire showed, both in CP and TD groups, sufficient test-retest reliability and internal consistency, and showed sufficient concurrent validity against J-KIDSCREEN-27 as an external criterion. The domain of ‘Feelings about functioning’ of CPQOL-Teen did not correlate with any domain of J-KIDSCREEN-27 in the CP group, suggesting that it may reflect an aspect of QOL specific to adolescents with CP. Differences were presented in QOL ratings between the CP and TD groups in three of the five domains of CPQOL-Teen. The CP group had lower scores in the domains of ‘Communication & physical health’, ‘School wellbeing,’ and ‘Feelings about functioning’, but there were no differences seen between the groups in the domains of ‘General wellbeing & participation’ and ‘Social wellbeing’. Conclusions: The Japanese version of CPQOL-Teen Self Report Questionnaire proved to be a useful assessment scale to evaluate subjective QOL specific to adolescents with CP and may possibly promote effective and comprehensive interventions for them.
