Abstract
We have established a new registration system for a nationwide survey on cutaneous lymphomas, and prepared a guideline for cutaneous lymphomas, in cooperation with the Japanese Skin Cancer Society. The registration system is designed to achieve two main projects :
1) An annual, nationwide registration system of new patients with cutaneous lymphomas, by collecting minimal essentials of their clinical data : diagnosis, age, sex, treatment, etc.
2) A prospective, follow-up study of patients with cutaneous lymphomas in 10 selected institutes. We have constructed an on-line registration system.
The former project, which had already started in 2007, is expected to give us information on incidences of patients with cutaneous lymphomas in Japan. The latter is to evaluate the prognosis and long-term outcome of each patient treated in line with the standard treatment protocol or clinical trials.[Skin Cancer (Japan) 2009 ; 24 : 192-198]
