The Japanese Journal of Clinical Research on Death and Dying
Online ISSN : 2434-9089
Print ISSN : 0912-4292
Advance online publication
Displaying 1-2 of 2 articles from this issue
  • Aiko Tanaka, Chizuru Nagata, Tomoji Yabumoto
    Article ID: JJRD-D-24-00002
    Published: 2025
    Advance online publication: February 28, 2025
    JOURNAL RESTRICTED ACCESS ADVANCE PUBLICATION
    A questionnaire survey regarding advance care planning( ACP) and support for patients’concerns was conducted with general ward and home healthcare nurses involved in end-stage cancer nursing. Analysis of the responses of the 722 nurses revealed that approximately 65% of the respondents had discussed ACP for terminally ill patients with cancer and >90% of the cases that underwent ACP had discussed the patients’ concerns. The nurses considered their role in recognizing patients’concerns and connecting them to relevant departments. The 25 nurses’care survey items toward concerns were divided into “factors that support patient concerns” and“ factors that support daily life.”“ Factors that support daily life” was significantly higher among home healthcare nurses. These results indicate that nurses must recognize patients’concerns and connect them to relevant departments accordingly.
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  • Narratives of family members who cared for patients at home
    Ayaka Kawase, Kuniko Sugawara, Kasumi Abe, Yoko Kajiwara, Kiyomi Yokoy ...
    Article ID: JJRD-D-23-00005
    Published: 2024
    Advance online publication: September 09, 2024
    JOURNAL RESTRICTED ACCESS ADVANCE PUBLICATION

    This study aims to clarify the comprehensive well‒being of cancer patients living their final stage of life at home through the narratives of family members who cared for the patients at home. After conducting a qualitative and descriptive analysis of the narratives of seven family members, we extracted the following four core categories of tranquility created by liberation from treatment;happiness created by a familiar place and daily life;enjoyment and thankfulness created by connections;and fulfillment created by being able to live to the end as oneself. These findings would help caregivers understand the state of their patients' well‒being and offer guidance in determining the direction of care. The results emphasized the importance of caregivers verbalizing the meaning of well‒being realized in the familiarity of the home and communicating it to patients' families.

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