Self-Organized Social Network Service (Peer-to-Peer Support) for Individuals with Schizophrenia: Potential for Social Participation

抄録

Background: Individuals with severe mental disorders are increasingly using social media platforms to discuss their illnesses, seek advice, and support each other. This phenomenon is known as online peer-to-peer support.

Objective: This study aimed to identify the characteristics of online peer-to-peer support in Japan.

Methodology: Data were collected through semi-structured interviews and blog posts.

Results: Inductive thematic analysis revealed three themes: (1) expanding online networks of mutual support as self-organization progresses; (2) cultivating a positive self-identity for individuals with schizophrenia; and (3) taking steps toward social participation and inclusion.

Conclusion: Despite concerns regarding the risks of online communities, self-organized online peer-to-peer support groups promote social participation rather than isolation. However, this result cannot be generalized to all online communities because its quality is influenced by peer support structures and environments. Self-organized online peer-to-peer support groups with a flexible and receptive organizational culture effectively promote social participation. Our results suggest that online interactions that foster positive self-identity may be a prelude to offline social affiliations. In this study, individuals living with schizophrenia who communicated online were provided with a foundation that enabled them to take steps toward engaging in offline social participation. However, a sustainable management system is required. Hence, peer partnership services, in which the service is provided by peers, but its operation is conducted in collaboration with professionals, should be considered.