2010 Volume 24 Issue 2 Pages 89-102
As the advancement of the pediatric cardiology in recent years, the children with congenital heart disease (CHD) have been saved their lives and this results in the number of them. The problem of over-parenting which the children with CHD are given has been euphasised. Howerer, it is suggested that bringing them up and having guilt feeling for them makes consciousness of human growth as a parent.
The purpose of this paper is to explore the research question; “what illness experience process do a mother of her child with CHD trace?” 7 mothers of children with CHD in childhood were participated. The informant and I made chronological table from when whose child was born to the present, and then, had semi-structured interview along the table.
The current study found that (1) The experience process consisted of 3 stages: ＜the stage the disease turn out＞, ＜the stage the mother becomes a subjective to face the disease＞, ＜the stage the subjective shifts to the child＞. (2) 3 hypothetical knowledges are suggested. ① Their guilt feeling for their children can be caused in all stages. ② In the stage the mother becomes a subjective to face the disease, positive and negative experience are repeated at every medical treatment. ③ When the subjective shifts to the child, the mother takes a balance between thoughts from her experience and thoughts for child’s autonomy.
To support them, regardfulness of their loss and a feeling of maladjustment as a parent, and to focus the affirmative side of experience are important.
