Abstract
Purpose: This study aimed to examine the experience of patients with progressive muscular dystrophy, and clarify the status and process of achieving independent living.
Methods: A qualitative descriptive study using a modified grounded theory approach was conducted involving 18 patients.
Results: The subjects simultaneously experienced the process of [accepting the progression of the disease] in order to spend the rest of their lives with the disease, and that of [creating a balance between dependence on care and taking initiatives in activities of daily living] in order to be self-reliant as much as possible. In the process of achieving independent living, the subjects tried to [take initiatives in activities of daily living], suggesting that these processes were to 《explore ways to take initiatives in their lives》.
Conclusion: In 《exploring ways to take initiatives in their lives》, the subjects tried to maintain an attitude to take initiatives in their lives, even in a situation where they have to be physically dependent. The results suggested the need to provide appropriate support.
