Journal of Japan Academy of Midwifery
Online ISSN : 1882-4307
Print ISSN : 0917-6357
ISSN-L : 0917-6357
The lived experiences of reproduction for woman who has hereditary characteristics
a phenomenological study
Satoko NAKAGOMIShigeko HORIUCHIKazuhiro ITO
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JOURNAL FREE ACCESS

2004 Volume 18 Issue 2 Pages 44-62

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Abstract

Purpose
The purpose of this study is to understand and describe the lived experiences of women in the delivery and rearing of a child by looking at the characteristics inherited from the women's genes. Specifically, the focus is to explore the meanings of inherited genotype from parent to child.
Methods
1) Design: The qualitative methodology of phenomenology was selected as the philosophical basis patterned after M. Heidegger's ontology.
2) Co-researchers: The co-researchers in this study are woman who were afflictedwith achondroplasia inherited in an autosomal dominant manner. They volunteered to be co-researchers in this study.
3) Data collection: Data was collected from intensive face to face and audio-taped interviews. Co-researcher was interviewed in a non-structured and intensive manner.
Results
Based on the results of the interpretation, the central meanings of inheriting a genotype from parent to child for co-researcher was determined as follows;
“I will stake my life for my daughter and all little people”
Although she exerted all efforts in her school to do the same activities as the others, she was unable to cope. She started to live her own life after she met a group of disabled persons. She thought it was right for her to be supported by social welfare. Her daughter has the same character. She joined the support group with the support of her parents. She brought up her daughter to be able to live her own life.
There were several meanings of inheriting a genotype from parent to child which formed the central meaning of her experience are the following:
1) Appraising their abilities by individual not by others; 2) Concern in children's life by setting an example with their own life; 3) Coming to terms with the meaning of their existence according to the manner by which they raise their children; 4) Intangibly treasureoriented.
Conclusions
Women who have conge nital disabilities or constitutions found positive meanings in their lives. Their active lifestyle has set a good example for their children and the community.

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