Journal of Japanese Society of Child Health Nursing
Online ISSN : 2423-8457
Print ISSN : 1344-9923
ISSN-L : 1344-9923
Experience of mother raising child with severe motor and intellectual disabilities and medical care dependent groups of school age attending the medical day care facility
Tomomi SuzukiYukimi HiroseMayumi Nagata
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2016 Volume 25 Issue 1 Pages 1-7

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Abstract
Aim of this study is to obtain the nursing suggestions regarding support for mother who has child with severe motor and intellectual disabilities and medical care dependent groups (SMID-MCDG) of school age attending the medical day care facility, we have revealed experience of the mother. We selected 3 mothers as subjects, and semi structured interviews were conducted. After that, a qualitative analysis was performed. As a result, four categories were extracted: "I feel the weight of the SMID-MCDG's life", "I have guilt surrounding life and death of the SMID-MCTG" "There is a part of me that I do not like in raising my SMID-MCDG", "I have a positive attitude in my current lifestyle raising a SMID-MCDG of school age through medical day care facility" and "I attach meaning to the life of my SMID-MCDG through involvement at the medical day care facilities". This suggests that for a mother raising a school-age SMID-MCDG that attends a medical day care facility, long respites through transportation support, and presence of assistance medical day care facility's staff to support the life of SMID-MCDG and families are important.
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© 2016 Japanese Society of Child Health Nursing
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