Aim of this study is to obtain the nursing suggestions regarding support for mother who has child with severe motor and intellectual disabilities and medical care dependent groups (SMID-MCDG) of school age attending the medical day care facility, we have revealed experience of the mother. We selected 3 mothers as subjects, and semi structured interviews were conducted. After that, a qualitative analysis was performed. As a result, four categories were extracted: "I feel the weight of the SMID-MCDG's life", "I have guilt surrounding life and death of the SMID-MCTG" "There is a part of me that I do not like in raising my SMID-MCDG", "I have a positive attitude in my current lifestyle raising a SMID-MCDG of school age through medical day care facility" and "I attach meaning to the life of my SMID-MCDG through involvement at the medical day care facilities". This suggests that for a mother raising a school-age SMID-MCDG that attends a medical day care facility, long respites through transportation support, and presence of assistance medical day care facility's staff to support the life of SMID-MCDG and families are important.

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[in Japanese]

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[in Japanese]

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Aim: The aim of the present study was to reveal current status of home-visit stations on acceptance of child and future tasks. Subjects and Methods: This study used a postal questionnaire-based survey of 111 home-visit stations in A prefecture. Results: The questionnaire was answered by 42 facilities. Of the participants, 13 of 42 (31.0 %) reported accepting children. Nursing practices of the 13 facilities were many and various depending on children; to watch over the physical condition, to practice medical care and to play with them. Furthermore, these facilities were in consultation with various professions. On the other hand, 29 facilities (69.0%) where reported not to accept children demanded experienced nurses in child health nursing and medical institutions that will be admitted in the event of an emergency. Conclusion: Our results indicate that cooperation with various occupation is important for accepting children in home-visit station. It is necessary to consider a system method to share knowledge and care technique which experienced nurses and home-visit stations each other.

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[in Japanese]

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[in Japanese]

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This study aimed to describe the experiences of parents whose children require daily in-home medical care. Additionally, it examined their perception of what it means to be a parent, and their sense of self. A semi-structured interview was conducted with five parents using a qualitative- inductive method. Thirteen categories were extracted: (1) my child understands things and may has thoughts and wishes, so I want to better understand him/her; (2) I see that my child is growing and is in a good physical state, but I wonder if my child's development is positive or negative; (3) if my child is happy, then so am I, but if my child is sad, then I am too; (4) the meaning that I defined has changed and expanded; (5) that was really tough; (6) my family and the people who understand and extend a helping hand to us are connected; (7) circumstances often do not turn out as expected, and people behave in unpredictable ways; (8) I consider each of my family members, and I feel that we spend time with our family; (9) I live in the present moment, because I think that it is good for me, to be myself. The parents gained a sense of self through bonding with their children. The results of this study suggest that parents whose children require daily in-home medical care need support to feel a sense of self from their experiences.

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The purpose of this study was to investigate the utilization of a childhood diabetes self-care support system using tablet-type portable devices aimed to improve self-care ability and sense of self-efficacy in children with childhood diabetes. The subjects consisted of 15 children with type 1 diabetes, aged from 9 to 18 years. The subjects were asked to input data such as blood glucose levels during the diabetes camp on a specialized application that we developed for tablet devices. Changes in the summary of diabetes self-care activities (SDSCA) measure and self-efficacy scale scores were analyzed before using the system, immediately after using the system, and 1 month later. The system was evaluated based on the evaluation scores of the application and children's reactions while using the system. SDSCA measure scores significantly increased immediately after the camp. Enjoying the system to record their data and looking over their own data on a graph screen in an integrated fashion, children were able to easily link their behavior and insulin dosage to their blood glucose control. The results suggested that this system has the educational effects of encouraging children to be aware of their blood glucose levels and generate motivation for controlling it.

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This study aimed to clarify the factor structure of nurses' recognition of the parenting provided by a family and to examine the associated factor, in the process of beginning life at home after considering home medical care provision for their child. Questionnaires on parenting were distributed to nurses who cared for a child and their family during the consideration and initiation phases of home medical care. Effective responses were collected from 258 nurses. Significant factors in the nurses' recognition of parenting were as follows: "parents' thoughts about the state of home medical care and their child," (Factor 1), "parents' understanding of their child's physical condition and work in the whole family," (Factor 2), "parents' sense of being a parent that they felt based on spending each day with their child,", (Factor 3), and "understanding and enforcement of home medical care considering the child and parent." (Factor 4). Nurses who work in children's homes or have had experience with patients' transitioning toward home, can well identify the parenting enacted by the family when they participate in transition-support workshops. These findings suggested that nurses should understand the lives of children who require home medical care as well as their families, and then reflect on it themselves.

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[in Japanese]

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The aim of the current study was to clarify the factors that encouraged nurses to continue practicing in the field of pediatric nursing. We conducted semi-structured interviews with ten nurses in their 20s with 4 to 6 years of pediatric nursing experience. Analysis of the results, based on the Modified Grounded Theory Approach, identified 11 categories and 45 concepts. The 11 categories were as follows: overcoming practical difficulties, encouraging oneself to remain in the pediatric ward, exploring one's own way of getting along with child patients, feeling oneself recognized by child patients and their parents, becoming confident in performing challenging work, retaining one's composure in dealing with child patients and their parents, being fascinated by pediatric nursing once again, seeing oneself objectively to adapt to the situation, taking responsibility to protect child patients as a leading nurse, accepting new roles and tackling various problems, and being encouraged by communication with child patients. It was concluded that the motivation for nurses to continue practicing in the field of pediatric nursing was consistently supported by "being encouraged by communication with child patients".

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The purpose of this study was to investigate the utilization of a childhood diabetes self-care support system at a diabetes camp. This study was designed to verify the timely sharing of information between health professionals during the camp and the efficacy of the system as an educational tool. The subjects of this study were 22 health professionals. Using a tablet assigned, the health professionals accessed a specialized homepage to view data portrayed in a graph format and to conduct educational intervention, such as input feedback comments about daily blood glucose control. The results of a questionnaire survey conducted after using the system suggested that the tool was useful for data sharing, utilization in meetings, and educational intervention. The reasons of positive appraisal included availability of enough information regarding blood glucose and insulin and visibility of the graph screen display. However, the system requires further improvement. Issues that still need to be addressed in the future include improvement for data transmission environment, access rapidity, securing a sufficient number of tablets, and verification of the effects of long-term use.

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[in Japanese]

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[in Japanese]

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[in Japanese]

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[in Japanese]

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