2018 Volume 27 Pages 9-17
The present study aimed to clarify the experience of nine fathers raising school-age children with disabilities at home. Semi-structured interviews were conducted, and the obtained data were analyzed using a qualitative and descriptive method. This led to the extraction of seven categories, and the relationships among them were illustrated. Fathers suffering [distress regarding the disabilities of their children] had the basic idea of [respecting them as a human being regardless of their disabilities], [experienced relief from the mental and physical burdens due to support from people], and felt a [sense of fulfillment in being a parent due to their existence and growth]. These fathers also tried to [protect their families by playing paternal roles] and [adjust social participation aimed at improving their children’s QOL]. These experiences led to [self-growth through overcoming developmental issues]. We suggest that, to continue a home-based life, it is important to provide long-term support to the families of children with disabilities.
