神経難病と災害医療

抄録

Even after the Japanese people experience a devastating disaster in eastern Japan in March 11, 2011, disaster medical assistance plans have not yet been effectively provided for all of individuals with intractable neurological diseases, who are living in local communities, and receiving home medical care by using such medical equipment as artificial ventilators. It is our responsibility to make necessary preparations for those who cannot take refuge by themselves in case of disasters. Recently amended “Fundamental Disaster Relief Act” defines that local government can utilize and share personal information of those with intractable diseases when natural disasters take place, and it is expected that individual planning of disaster medical assistance will progress smoothly.