Current status of transitional medicine for patients with pediatric rheumatic diseases in our department.

Abstract

【Objective】To clarify the present situations of adult patients with pediatric rheumatic diseases as to the hospital visits, higher education, employment, marriage, and pregnancy. 【Methods】 Questionnaires were sent to patients over 20 years old as of 2019 who had admitted or seen multiple times to our department. The data were compared with the official database of general population in the same age group （nationwide survey） and with the previous survey in 2006 （previous survey 2006）. 【Results】 114 patients responded to the survey（ response rate 45.8％）. [Hospital visit] The department the patients visited was internal medicine（ 47.9％）, rheumatology（ 33.0％）, and pediatrics（ 21.3％）. The incidence of patients visited to Pediatrics significantly decreased compared with the previous survey 2006. [Higher education] 42.3％ of the respondents went on to university, which increased from the previous survey 2006. [Job] The highest rate of industry type was medical welfare（ 39.7％）, which was significantly higher than that of normal population with the same age group. [Marriage] Marriage rate was 35.4％, the same as nationwide survey and previous survey 2006. [Pregnancy] 66.7％ of pregnant women changed their treatment around their gestation, and 33.3％ experienced a miscarriage, and 19.0％ received treatment for infertility. 【 Conclusion】 The rate of transition to adult medicine increased and their life events were less hindered by disease than that of previous survey 2006.