Abstract
[Purpose] To get an understanding of the home life of infants with lower limb disability, a 20-page A4 Health and Living Log (provisional name) was created to facilitate sharing of information with families. The process of the log creation is reported, and the recorded items and ease of log entry by families was investigated. [Subjects] The subjects were 44 families with children attending a kindergarten facility for infants with physical disabilities in T city. [Methods] How the items of children's growth and development and life at home were being recorded, and the actual status of information exchange was surveyed by questionnaire. Furthermore, to record the information, a Health and Living Log was distributed, and the items and their ease of entry were investigated. [Results] Replies were received from 37 out of the 44 families, a response rate of 84.1%. Families were recording their children's growth and development, life at home or medical consultations in commercially available growth records, diaries, or blogs, but had given up recording items related to growth in Mother and Child Health Notebooks. Regarding the Health and Living Log, families gave a high evaluation to the inclusion of information offered by health facilities and the items of Condition at Birth and Growth and Development. [Conclusion] As a future topic, there is a need to investigate the information needed by related organizations and professions.
