Japanese Journal of Gerontology
Online ISSN : 2435-1717
Print ISSN : 0388-2446
Original articles
Exploratory study of regret experienced by family caregivers of dementia patients in surrogate decision-making
Factors causing regret and choosing methods that affect regret
Mariko ShiozakiNozomi SatoKohei Masumoto
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2020 Volume 42 Issue 3 Pages 200-208

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Abstract

  OBJECTIVES: An exploratory study was conducted using regret as one dimension to focus on surrogate decision-making by family caregivers of dementia patients. The specific goals were to qualitatively compile (1) factors causing regret and (2) methods of choosing during surrogate decision-making that affect regret. METHOD: Semi-structured interviews were conducted with 11 family caregivers with dementia patients. RESULTS: Factors causing regret were classified by qualitative analysis into 10 categories under 3 themes (insufficient knowledge, psychological factors in the family caregiver, and the effects on other family members). Effects on regret of the method of choosing were classified into 9 categories. DISCUSSION: The important points for choices without regret were summarized as these 3 points : don’t avoid deciding, don’t compare options in a trade-off, and don’t try making the right choice.

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© 2020 Japan Socio-Gerontological Society
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