A video to initiate advance care planning: The development of educational and supportive materials for patients with pancreatic and biliary tract cancer

Abstract

Recent evidence has shown the effectiveness of advance care planning (ACP). The Clinical Practice Guidelines for Pancreatic Cancer 2019 suggest that ACP be conducted for patients with pancreatic cancer. However, little is known about how best to practice ACP for patients with pancreatic and biliary tract cancer and their families. To help them initiate ACP, we developed educational and supportive materials by utilizing a video. Based on the International Patient Decision Aids Standards (IPDAS) that involved feedback of patients, families, and interdisciplinary health-care professionals, we developed 10-minutes of materials including a 5-minute video. A total of 3 educational sessions confirmed the feasibility of the materials. We describe the comprehensive developmental process, and discuss what is needed for such materials regarding ACP. The use of educational and supportive materials involving a video may be feasible and promising in helping patients and families initiate ACP in various institutions.