Objective: To investigate the health literacy of people living with Parkinson’s disease (PD) in Japan and clarify the actual status of their health literacy (HL). Furthermore, we aim to clarify how health literacy of people living with PD affects their self-management and health-related quality of life (HRQOL).
Methods: A cross-sectional study was conducted using a self-administered questionnaire method in people living with PD. Of the 203 copies collected, 182 copies were included in the analysis. Survey items included demographic information, Functional, communicative and critical health literacy, self-management skills, and HRQOL (Parkinson’s disease questionnaire-8).
Results: The mean (SD) of age was 71.95 (8.45); 57.1% females. The mean (SD) of HL; functional HL 2.76 (.68), communicative HL 3.05 (.60) and critical HL 2.71 (.68). Multiple regression analysis with self-management as the dependent variable showed that only functional HL was associated with self-management of symptom (β=.24, p=.006) and self-management of social life (β=.23, p=.005). Also, only functional HL was associated with PDQ-8SI as HRQOL, even excluding the effect of self-management skills (β=-.19, p=.013).
Conclusion: Functional HL may affect HRQOL in people living with PD and the approach needs to consider the level of health literacy
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