関節リウマチ患者のQOL患者によるQOL評価とその家族によるQOL評価の比較 ～患者の身体機能障害指標スコアFDS分類別比較～

抄録

Objective: We compared the difference between assessments by RA patients and assessments by their families according to the functional disability score (FDS) classification of RA patients.
Method: 121 RA patients and their families were included in the study. Both RA patients and their families independently completed Arthritis Impact Measurement Scales version 2 (AIMS2) health status questionnaires. Various fields of QOL scores of the assessments of each group were compared according to the functional disability score (FDS) classification of RA patients.
Results: QOL concerns such as “support from family and friends” and “arthritis pain” were underestimated by the families. In addition, in the low scores of FDS, there was a gap in QOL concerns such as “support from family and friends” and “arthritis pain”. But, in the high score of FDS, there were few differences in mean QOL scores between the two groups.
Conclusion: The present study reveals that the level of physical disability in RA patients was connected with the gap between the assessments of the two groups. Medical worker for the families of RA patients are required to make an adjustment to deepen the understanding in the families of RA patients depending on the level of physical disability in RA patients.