発達障がい児の家族が経験する支援獲得プロセス

―母親へのインタビュー調査の検討から―

抄録

　　The purpose of this study was to map the experiences of families with children with developmental challenges in obtaining support during their nursing. The subjects were nine mothers; data were collected using semi-structured interviews and analyzed using modified grounded theory.

　　Interpretation of findings resulted in a model with five stages: “awareness by oneself and others,” “intermediate support system,” “purposeful support for parents,” and “purposeful support for children.” These stages were further reduced to sixteen concepts.

　　First, mothers or other stakeholders in children's lives become aware of children's atypical development. The parents become proactive and try to get more information in this area. During all this time, they are supported by others and through information. At the same time they consider their attitudes to these issues. Then they choose purposeful support for themselves and their children; that is, in order to acquire purposeful support, they require interaction between mediated support and parents' attitudes.

　　Therefore, it was implied that the process had to involve an intermediate support system to reach purposeful support between the stages.