2023 Volume 43 Pages 419-428
Aim: This study reviewed the relevant literature with the aim of synthesizing the structure of internal and external negotiations in terms of the ongoing multi-level loss of control for patients with amyotrophic lateral sclerosis.
Methods: This study was carried out using a method of meta-synthesis. Eleven original articles in Japanese and two original article in English were utilized. Perceptual Control Theory provided a coding framework.
Results: From 99 systems, three themes characterized the internal and external negotiations of patients with amyotrophic lateral sclerosis: “Identify the threat,” “Refuse, withdraw, expect self,” and “Travel the ALS survivor world”.
Conclusions: This review adds knowledge to our understanding of the structure of multi-level loss of control for patients with amyotrophic lateral sclerosis, suggested that it is necessary for these patients to continue external negotiations to maintain a sense of control. Future research should focus on the integrative interpretation of internal and external negotiations in amyotrophic lateral sclerosis patients who are attempting to maintain a sense of control.
