2024 Volume 44 Pages 419-430
Aim: To elucidate the importance of elements related to continuation and discontinuation home care in patients with advanced Parkinson’s disease (APD) and explore the factors present among these important elements.
Methods: A survey was conducted among PD self-help group patients and doctors and nurses providing APD care in Japan using a questionnaire created through qualitative analysis of literature.
Results: The survey received 158 responses. Descriptive statistics and factor analysis revealed three important factors and 14 elements of home care continuation for patients with APD, including multidisciplinary management, self-care, and access to specialized doctors, and five important factors and 20 elements of home care discontinuation, including caregiver support, nursing care needs, psychiatric symptoms, fall experience, and difficulty with excretory movements. Furthermore, the Cronbach alpha coefficients of the factors were generally good, falling between 0.736 and 0.956.
Conclusion: This survey revealed eight important factors and 34 elements related to home care continuation or discontinuation for patients with APD. These findings can be used as an assessment tool for supporting home care.
