Life Ethnography of a Life of a Person with Intractable Neurological Diseases
Based on "Thick Description" of Home-care
2012 Volume 11 Issue 1 Pages 96-114
Details
2012 Volume 11 Issue 1 Pages 96-114
In this study, we focused on the life of a patient with amyotrophic lateral sclerosis in a home-care situation and described his relationship with caregivers. The purpose of this study was to present a complete picture of a patient in home care and the actor who is most important in home activities through participant observation. The results of analysis1 can be summarized as follows: (1) the position of the patient includes not only "patient" but also "liver"; (2) the top priority of the rule of the field is to minimize his passivity; (3) the potential of communication of the patient involves the rule of the field. Analysis2 revealed that a technical peer supporter provides communication support suitable for the field.
