入院中の小児がん患児に対する家族による付き添い支援の現状

抄録

This study explored the role and significance of family caregivers accompanying children with cancer during hospitalization. An observational survey was conducted on hospitalized children with cancer and their families, with findings analyzed through case studies. Results indicated that mothers not only provided emotional support but also managed their children’s daily needs. For the children, the presence of family caregivers and other members served as important support in coping with treatment. However, while many mothers strived to fulfill their caregiving roles, some experienced physical and psychosocial burdens. In addition, other family members were forced to adapt their lifestyle and roles to accommodate the child’s illness. Improving the hospital environment for pediatric patients requires fostering a cooperative relationship between families and medical staff. It is also necessary to provide comprehensive social support for all family members, such as measures that facilitate mothers’ reintegration into society and improved care for siblings who remain at home.