2026 Volume 35 Pages 191-199
This longitudinal intervention study, employing a multiple-case design based on the Roy Adaptation Nursing Model, aimed to evaluate the usefulness of a support model focusing on caregivers’ parenting attitudes for fostering self-care among infants and school-aged children with congenital heart disease. Five mothers received interventions preoperatively and before discharge. Data were collected through questionnaire surveys and semi-structured interviews conducted preoperatively, before discharge, and post-discharge. All mothers demonstrated changes and expansions in their perceptions of their children’s self-care abilities and engagement, indicating the usefulness of the assistance provided. These changes were classified into two patterns. In pattern A, support model facilitated mothers’ awareness of issues and developed greater insight into their children’s self-care abilities, leading to expanded, proactive engagement. In pattern B, mothers recognized their children’s abilities through a structured approach, demonstrating the emergence of an adaptive cycle. Feedback from the children’s reactions during surgery and recovery further strengthened mothers’ beliefs about fostering self-care, leading to increasingly proactive engagement and the establishment of a continuous adaptive cycle.
