神経難病専門病院でのParkinson病advance care planningの取り組み

抄録

Advance care planning (ACP) is a process of planning future medical care for the time when patients become unable to make their own decisions, and not an event. During this process, patients explore, discuss, articulate, and document their preferences. Our neurology hospital includes neurologists, nurses, and rehabilitation therapists specializing in neurological diseases, medical consultants, and registered dietitians who contribute their respective expertise to ACP. Our values are as follows: “Relationships of trust,” “Value what the patient values,” “Never give up or leave the patients alone,” and “Share the patient’s choices and thoughts with the family and care staff.” The most crucial factor of ACP is to support patients with Parkinson disease so that they can receive treatment with a peaceful mindset and live fulfilling lives in their own way because it requires long–term treatment that involves various factors such as outlook on life, family relationships, and living environment, and patients themselves have to make difficult choices. We would move forward together, intending to participate in the decision–making process, and sharing the concerns. For treating Parkinson disease, the importance of a comprehensive approach that considers not only diagnosis, treatment, and environmental preparation but also ACP, including its psychological and social significance will increase significantly.