The Wishes of Mothers Raising Children with Autism Spectrum Disorder

An Analysis of Expressions of Hope and Desire in Communication Notebooks with Supporters

Abstract

[Objective] The aim of this study was to clarify the characteristics of the "wishes" expressed by mothers of children with disabilities, particularly those with autism spectrum disorder (ASD). [Method] The study analyzed communication notebooks written by nine mothers who had used a mother-child enrollment program in the past. The children were divided into two groups based on their disability type: the ASD group and the non-ASD group. The content of the entries from both groups was examined. Through quantitative and qualitative content analysis, the characteristics of hope and desire expressions in both groups were compared. [Results] Both groups expressed "mother's hopes" frequently, while "mother's desires" were less common. This difference was especially notable in the ASD group. [Discussion] It is important to provide empathetic support for mothers of children with disabilities, building on a warm parent-child relationship, while helping them overcome immediate challenges. It is crucial to offer long-term perspectives and support, enabling them to hold onto hope for the future for mothers of children with ASD.