Purpose: This study aimed to identify the experiences of family members supporting a patient who developed chronic GVHD after hematopoietic stem cell transplantation and to examine nursing support for the patient and family to examine nursing support for patients and their families.
Methods: Semi-constructive interviews were conducted with nine family members of a patient diagnosed with chronic GVHD who was attending an outpatient clinic. The content of the interviews was analyzed qualitatively and descriptively.
Results: The family members described their experiences of gratitude for having life, suffering from the uncertainty of chronic GVHD, and The family members were asked about "their experiences of being thankful for the existence of life, " " suffering from the uncertainty of chronic GVHD, and" being prevented from having the future they had envisioned. "
They supported the patients by using the following approaches: "being prepared to support them as a family," "seeking what they can do as a family to cherish the present," "keeping a distance to avoid confrontation," "revealing their feelings," and "sharing their experiences with others besides the patients".
Conclusions:Families of patients with prolonged chronic GVHD continued to wish for the patient's recovery and to think about what they could do as a family in the face of the uncertain course of the disease. It became clear that they felt anxious and distressed because they could not fully grasp the patient's situation. Therefore, we believe that it is necessary to provide support to encourage communication between patients and their families, and to provide opportunities and places where families can consult with patients.
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