Objective: To assess the appropriateness of care given by family caregivers of elderly dementia patients living at home in underpopulated regions and to identify factors related to inappropriate care in order to foster to the provision of appropriate care.
Methods: A qualitative design for searching related factors was used. Semi-structured interviews were conducted using the Troublesome Behavior Scale (TBS) on 10 family caregivers of elderly dementia patients who were using respite care facilities in areas certified as underpopulated regions in Japan and who consented to participate in this study. Interview contents included care needs, the living conditions of caregivers, use of social resources and the care given by families. Subjects whose care involved "physical restraint or other actions restricting the patient's activities at home" were classified in the inappropriate care group (inappropriate group), while those whose care did not involve such actions were classified in the appropriate care group (appropriate group), and factors related to appropriate care were investigated.
Results: All 10 elderly dementia patients living at home were receiving care from their families. No intergroup differences were observed in the use of social resources, and further support was desired by subjects. Compared to the appropriate group, the inappropriate group had more diverse care needs and tended to provide care more frequently. Regarding the living conditions of caregivers, caregivers in both groups had great time constraints in their lives. Compared to the appropriate group, the inappropriate group had a higher proportion of subjects with no assistant caregivers, and also tended to have a higher proportion of subjects who had factors influencing their fundamental lifestyles, such as economic difficulties, change of residence, retirement, and difficulty continuing work or studies.
Discussion: As care provision in underpopulated regions affects household budgets, issues associated with such regions were thought to contribute to care-related problems. Necessary measures may include the allocation of time for caregivers in order to enable them to solve economic difficulties in the family, support that acts as a substitute for assistant family caregivers, and support for changes in lifestyle such as change of residence and retirement.
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