シンポジウム18―3　神経難病患者の総合的支援　在宅神経難病患者の災害時支援計画

抄録

It is inevitable for patients at home with neurological intractable diseases to prepare against natural disasters, such as severe earthquakes or power failures, because they need not only daily physical care but also extensive medical supports. Administrative organs have to support those patients in case of disasters, and they have to make up countermeasures in advance for their refuge in safety. For this purpose, we published a guideline in 2008 for administration to make support plans for those patients. To plan countermeasures against calamities according to this guideline is an urgent issue especially for those who need extensive supports at home.